How to

Guides, standards and toolkits supporting service providers, policy makers and commissioners to develop and promote young people's participation.

• Health information, health structures and patient involvement: what we think
  
  Over the past three years NCB has run a series of health consultations with 79 children and young people from around England. The NCB have summarised the recommendations from the five events into a clear and concise document containing the young people's views and the implications for the health structures involved.
  
  Publisher: National Children's Bureau (NCB)
  Published Date: 28/08/2012
  
  
• A Practical Guide to Using Service User Feedback & Outcome Tools to Inform Clinical Practice in Child & Adolescent Mental Health
  
  Some initial guidance from the Children and Young Peoples’ Improving Access to Psychological Therapies Outcomes-Oriented Practice (CO-OP) Group
  
  Publisher: IAPT
  Published Date: 18/02/2012
  
  
• Involving children and young people in health services
  
  This challenging new report makes recommendations to ensure the views and experiences of children and young people are at the heart of NHS reforms. It accompanies the publication Children and young people’s health: where next? and is produced by the RCPCH, NHS Confederation supported by the Office of Public Management (OPM).
  
  Publisher: NHS Confederation
  Published Date: 20/12/2011
  
  
• Communicating and engaging with young people
  
  A new guide to help employers improve their team's communication and engagement skills with children and young people
  
  Publisher: Children’s Workforce Development Council (CWDC)
  Published Date: 20/10/2011
  
  
• Involve Me
  
  The Involve Me resource aims to increase the involvement of people with profound and multiple learning disabilities (PMLD) in decision making and consultation. Involve Me: a practical guide has been launched along with an independent evaluation of the project. The guide refers to real-life examples as well as video clips, downloadable resources and the Involve Me film, which are available on an interactive DVD. The content shows how staff at four sites used different creative approaches to involvement. The guide also demonstrates how everyone, including staff, families and policy-makers, can start involving people with PMLD in decision-making and consultation.
  
  Publisher: Mencap
  Published Date: 23/09/2011
  
  
• Enjoy, achieve and be healthy: the mental health of black and minority ethnic children and young people
  
  This report is based on a policy overview and consultation with 11-25-year-olds. It highlights the emergence of BME children receiving insufficient and ineffective consideration due to their age and ethnicity.
  
  Publisher: The Afiya Trust
  Published Date: 07/07/2011
  
  
• How many times do we have to tell you? A briefing from the National Advisory Council about what young people think about mental health and mental health services
  
  This briefing is based on the work of the National Advisory Council' (NAC) Young People's Reference Group, and on a short literature review, which looked at papers and reports involving consultations with children and young people. The reports were all published within the last ten years and look at what young people think about mental health, mental health services, the professionals who help them and other issues such as stigma.
  
  Publisher: National Advisory Council (NAC)
  Published Date: 30/06/2011
  
  
• You’re Welcome: quality criteria for young people friendly health services (2011)
  
  Sets out principles to help commissioners and service providers to improve the suitability of NHS and non-NHS health services for young people. The guidelines can reinforce young people’s social responsibility as life-long users of the NHS and encourage them to share in the decisions made about their health.
  
  Publisher: Department of Health (DH)
  Published Date: 19/05/2011
  
  
• DH: You're Welcome quality criteria: making health services young people friendly (news)
  
  The You’re Welcome programme has changed. Since 31 March 2011, You’re Welcome and the review process is locally led. An updated Department of Health quality criteria for young-people friendly health services self-review tool (which is referred to as ‘You’re Welcome’) is now available. The content reflects the revisions made to the quality criteria. (Previous DH quality criteria for young people friendly health services, 'Your'e Welcome' are still relevant.
  
  Publisher: Department of Health (DH)
  Published Date: 19/05/2011
  
  
• Self-review tool for quality criteria for young people friendly health services (2011 edition)
  
  An updated self-review tool for the DH You're Welcome quality criteria for young people friendly health services. The quality criteria provide good practice guidance that is based on local practice and evidence of what will improve patient experience and health outcomes for young people. Use of the quality criteria also helps to encourage young people to share in decisions about their health and to increase effective use of NHS and public health services.
  
  Publisher: Department of Health (DH)
  Published Date: 19/05/2011
  
  
• Guidelines for research with children and young people
  
  Guidelines for researchers who are contemplating involving children and young people in their research project as participants or in a more active role.
  
  Publisher: Participation Works
  Published Date: 06/04/2011
  
  
• A comparison of the CAMHS quality standards for children and young people’s participation and the You’re Welcome quality criteria self assessment toolkit
  
  A comparison of the NCSS/HASCAS quality standards and the You're Welcome quality criteria self assessment toolkit. Clarifies the relationship between the two documents and sets out a rationale for their use. Note: The You're Welcome quality criteria self assessment toolkit was updated and relaunched in May 2011 as the Self-review tool for quality criteria for young people friendly health services - available at http://www.chimat.org.uk/resource/item.aspx?RID=108468
  
  Publisher: Government Office for East of England
  Published Date: 02/02/2011
  
  
• Puzzled Out
  
  Puzzledout.com is an online participation tool for commissioners and young people. It helps young people influence how child and adolescent mental health services (CAMHS) are commissioned and provided. Services, commissioners and young people’s participation groups can create online surveys and polls to gather the views of ex, current and potential service users. It will help you implement the service user engagement elements of the mental health strategy and other NHS reforms.
  
  Publisher: Cernis
  Published Date: 27/01/2011
  
  
• Quality Network for Community CAMHS (QNCC): service standards
  
  Service standards which have been developed in consultation with professionals, young people, parents and carers, follow a care pathway and cover aspects of policy.
  
  Publisher: Royal College of Psychiatrists
  Published Date: 26/01/2011
  
  
• No decision about me without me (participatory video)
  
  Developing the participation of children and young people in the services they receive from CAMHS providers is no longer an optional 'add on' for key professionals. It is a key facet in the delivery of these services and a key component of government policies for the development of the NHS. This short film explores why young people believe their participation is important. Features examples of good practice and how this leads to improved outcomes for young people. This short video could be used in meetings and to encourage discussion with commissioners.
  
  Publisher: National CAMHS Support Service (NCSS)
  Published Date: 30/11/2010
  
  
• Empowering participation in CAMHS
  
  This presentation focus on how Surrey CAMHS have taken forward their participation work. This presentation was given at the NCSS conference “No Decision About Me Without Me” on the 28th October 2010.
  
  Publisher: Surrey CAMHS
  Published Date: 15/11/2010
  
  
• Commissioning emotional wellbeing and mental health services
  
  This presentation focuses on how emotional wellbeing and mental health services were commissioned in Cornwall. This presentation was given at the NCSS conference “No Decision About Me Without Me” on the 28th October 2010.
  
  Publisher: Cornwall and Isles of Scilly NHS
  Published Date: 15/11/2010
  
  
• Participation strategy template
  
  Template to help services develop a participation strategy.
  
  Publisher: National CAMHS Support Service (NCSS)
  Published Date: 10/11/2010
  
  
• Children and young people’s involvement in formal meetings: A practical guide
  
  This guide aims to help those who want to more effectively include children and young people in their adult-led meetings.
  
  Publisher: Participation Works
  Published Date: 06/09/2010
  
  
• Not just a phase: A guide to the participation of children and young people in health services
  
  Information to ensure the safe, meaningful and ethical participation of children and young people within the delivery of quality child health services. It is designed primarily for paediatricians, senior children's nurses and leaders of organisations which provide general and specialised health services for children and young people.
  
  Publisher: Royal College of Paediatrics and Child Health (RCPCH)
  Published Date: 15/05/2010
  
  
• Aiming High for Young People: engaging through social media
  
  DCSF have created a set of materials to help communicate and collaborate with young people through social media and inspiring video content. This advice will help reach out to a youth audience by promoting activities and encouraging innovative ways of communicating.
  
  Publisher: Department for Children, Schools and Families (DCSF)
  Published Date: 26/02/2010
  
  
• Exploring impact: public involvement in NHS, public health and social care research
  
  This study looks at the impact of public and patient involvement in research through an in-depth review of published literature. It draws together examples of how public involvement is conducted, and how it makes a difference. It also raises questions about the quality of evidence showing the impact of such involvement, revealing huge variations in how this is assessed and reported, highlighting difficulties in judging it or drawing general conclusions.
  
  Publisher: INVOLVE
  Published Date: 06/01/2010
  
  
• Turning what young people say into what services do: Quality standards for children and young people's participation in CAMHS
  
  These quality standards published in 2009 follow on from a two year collaboration between Young Minds, NCSS and HASCAS. The project aimed to bring together what is known about what young people want from services, building upon previous work by the full range of statutory and voluntary agencies. Analysis of the CAMHS self assessment matrix showed that the biggest challenges facing both commissioners and providers are user involvement and engagement of BME groups. In addition many vulnerable young people do not choose to use specialist CAMHS because they feel it is not appropriate for their age/culture/interests. The project addresses specifically the needs of this group. Three publications comprise Quality Standards, an annotated bibliography and an interactive literature review.
  
  Publisher: Health and Social Care Advisory Service (HASCAS)
  Published Date: 09/04/2009
  
  
• Audit of participation across the North East region
  
  The aim of this document is to offer a brief overview of participation work happening across the North East Region. It highlights examples of relevant practice within child and adolescent mental health services (CAMHS) across the North East. It gathers young people’s views of participation within CAMHS.
  
  Publisher: National CAMHS Support Service (NCSS)
  Published Date: 01/04/2009
  
  
• The Junction: What services should be in place to support youngpeople aged 16 and 17 years with acute mental healthneeds in Lancashire?
  
  A review of inpatient services by young service users in Lancashire, assessed against national criteria and with recommendations for changes to ensure more appropriate services.
  
  Publisher: Lancashire Care NHS Foundation Trust
  Published Date: 28/03/2009
  
  
• QNIC: A Quality Network for Inpatient Child and Adolescent Mental Health (CAMHS)
  
  QNIC aims to demonstrate and improve the quality of in-patient child and adolescent psychiatric in-patient care through a system of review against the QNIC service standards. This process follows a clinical audit cycle with self-review and peer-review.
  
  Publisher: Royal College of Psychiatrists (RCPsych)
  Published Date: 24/03/2009
  
  
• Hear By Right: supporting organisations in putting young people's voice at the heart of service delivery
  
  Standards framework and practice examples for statutory and voluntary sector organisations to assess and improve their practice and policy on the active involvement of children and young people.
  
  Publisher: National Youth Agency
  Published Date: 30/01/2008
  
  
• Medicines management: everybody's business. A guide for service users, carers and health and social care practitioners
  
  This booklet aims to empower service users and carers to ask relevant questions about medication and have their views taken into account, and to help health and social care practitioners improve their person-centred approach in the area of medicines management.
  
  Publisher: Department of Health (DH)
  Published Date: 09/01/2008
  
  
• Listen up! person-centred approaches to help young people experiencing mental health and emotional problems
  
  Makes the case for fundamental change in the service model for young people. It calls on commissioners to designate a lead agency and person to co-ordinate the commissioning of services for young people.
  
  Publisher: Mental Health Foundation
  Published Date: 23/09/2007
  
  
• You're Welcome quality criteria: making health services young people friendly
  
  The You’re Welcome programme has changed. Since 31 March 2011, You’re Welcome and the review process is locally led. However, you can find a downloadable version of the updated Department of Health quality criteria for young-people friendly health services self-review tool (which is referred to as ‘You’re Welcome’) at this link. The content reflects the revisions made to the quality criteria. DH would like to reassure local areas, commissioners and services that the previous Department of Health quality criteria for young people friendly health services, You’re Welcome’ are still relevant.
  
  Publisher: Department of Health (DH)
  Published Date: 01/04/2007
  
  
• Training for change: emerging impact of the Ready Steady Change and other participation training materials
  
  Report highlighting how the Ready Steady Change (RSC) training resources have been used and the impact they have had. Includes ideas about how to get the most from the training materials, information on other training packages available and suggestions about where to go for further support and resources. It showcases organisations who are taking participation seriously with leading examples of how Ready Steady Change has been put into practice over the last two years.
  
  Publisher: Children's Rights Alliance for England (CRAE)
  Published Date: 23/03/2007