Disability: Research

This page shows the latest 15 resources to be added to the Disability research section of the site. New resources are added as they are published.

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• Relationships between sleep disruptions, health and care responsibilities among mothers of school-aged children with disabilities
  Sleep problems are more common among children with disabilities. This study identifies a group of mothers with chronic sleep interruption and demonstrates related poor maternal subjective health and lower participation i ...
  
  Publisher: Journal of Paediatrics and Child Health
  Published Date: 2013
  
  
• Parents of children with physical disabilities – perceived health in parents related to the child's sleep problems and need for attention at night
  The authors aimed to study whether sleep problems and need for night-time attention among children with physical disabilities are associated with perceived parental health, headache, psychological exhaustion, pain due to ...
  
  Publisher: Child: Care, Health and Development
  Published Date: 2013
  
  
• Volunteer activity in specialist paediatric palliative care: a national survey
  The objective of this study was to assess the involvement of volunteers with direct patient/family contact in UK palliative care services for children and young people.
  
  Publisher: BMJ Supportive & Palliative Care
  Published Date: 2013
  
  
• Self-management and skills acquisition in boys with haemophilia
  There is an increasing prevalence of children/young people with long-term conditions (LTC) in the UK due to improvements in health-care management and delivery. These children are often involved, from an early age, in th ...
  
  Publisher: Health Expectations
  Published Date: 2013
  
  
• Long-term outcome after percutaneous endoscopic gastrostomy in children
  To learn the long-term outcomes of the patients who have undergone PEG placement, the authors reviewed their experience with children who underwent this procedure in their institute.
  
  Publisher: Pediatrics & Neonatology
  Published Date: 2013
  
  
• A systematic review of the clinimetric properties of measures of habitual physical activity in primary school aged children with cerebral palsy
  Regular participation in physical activity is an important determinant of health for children and adolescents with cerebral palsy (CP). However, there is little consensus on the most valid or reliable method to measure p ...
  
  Publisher: Research in Developmental Disabilities
  Published Date: 2013
  
  
• When baby's chronic illness and disability interfere with breastfeeding: women's emotional adjustment
  This study explores the emotional adjustments that women make when their baby's chronic illness or disability threatens breastfeeding.
  
  Publisher: Midwifery
  Published Date: 2013
  
  
• Effects of short-term disability awareness training on attitudes of adolescent schoolboys toward persons with a disability
  Schoolboys participated in a disability awareness training programme that included guest speakers (athletes from the Paralympics and the Special Olympics), a documentary about people with a disability, a disability simul ...
  
  Publisher: Journal of Intellectual and Developmental Disability
  Published Date: 2013
  
  
• Research with deaf children and not on them: a study of method and process
  This study addresses the design requirements and innovative data collection methods for a study that aimed to be deaf-centred and child-friendly. The approach was created for a 6-year longitudinal study of Sign Bilingual ...
  
  Publisher: Children and Society
  Published Date: 2013
  
  
• Assessing the emotional quality of parent–child relationships involving young children with special needs: applying the constructs of emotional availability and expressed emotion
  Sensitive, responsive, and dependable relationships are key to providing the support and encouragement all children need for optimal development. Unfortunately, parents and their young children with special needs often f ...
  
  Publisher: Infant Mental Health Journal
  Published Date: 2013
  
  
• Short term memory and working memory in blind versus sighted children
  There is evidence that blind people may strengthen their memory skills to compensate for absence of vision. However, which aspects of memory are involved is open to debate and a developmental perspective is generally lac ...
  
  Publisher: Research in Developmental Disabilities
  Published Date: 2013
  
  
• Medical home and pediatric primary care utilization among children with special health care needs
  The medical home model seeks to improve health care delivery by enhancing primary care. This study examined the relationship between the presence of a medical home and pediatric primary care office visits by children wit ...
  
  Publisher: Journal of Pediatric Health Care
  Published Date: 2013
  
  
• Update on the investigation of children with delayed development
  The authors of this article say that children develop in the domains of cognition, speech and language, motor, personal skills, social skills and activities of daily living in a predictable and organised manner but 3,000 ...
  
  Publisher: Journal of Paediatrics and Child Health
  Published Date: 2013
  
  
• Patterns of family management of childhood chronic conditions and their relationship to child and family functioning
  Understanding patterns of family response to childhood chronic conditions provides a more comprehensive understanding of their influence on family and child functioning. In this paper, the authors report the results of a ...
  
  Publisher: Journal of Pediatric Nursing
  Published Date: 2013
  
  
• Short break and respite services for disabled children in England: comparing children's and parents' perspectives of their impact on children
  This qualitative thematic analysis of open-question responses from 352 parents and 73 disabled children examines their accounts of the impact of short break services on disabled children. Participants' perspectives diffe ...
  
  Publisher: Children and Society
  Published Date: 2013