Disability: Guides and Practice

Resource Information

Type: Collection

Relationships

Member of:

Collection : Disability

Contains:

Report : Living with a Seriously Ill Child

Standard : Aiming High for Disabled Children: Short breaks implementation guidance

Standard : The Good Teeth Guide for Parents and Carers of Children with Extra Needs

Report : Guiding Your Teenager with Special Needs through the Transition from School to Adult Life

Website : Council for Disabled Children

Website : Association of young people with ME (AYME)

Website : DWP Disability and Carers Service Website

Report : Complex disability exemplar

Standard : Commissioning children's and young people's palliative care services: a practical guide for the NHS commissioners

Standard : You can make a difference : Improving primary care services for disabled people

Report : Supporting disabled parents and parents with additional support needs

Report : The e-enablement of the Common Assessment Framework(CAF)

Standard : Increasing the uptake of direct payments

Website : Skill: National Bureau for Students with Disabilities

Website : DREAM Team

Website : Cystic Fibrosis Trust Website

Website : Health Care Transitions

Website : Adolescent Autonomy Checklists

Website : Transition Resources - Kentucky Cabinet for Health and Family Services

Website : Activities Unlimited Website

Website : Contact a Family - Disabilities

Website : Royal Children's Hospital, Melbourne: Transition Project

Website : HealthSpace

Website : Good 2 Go Transition Program - Canada

Website : Adolescent Health Transition Project: Health History Summary for Teens - USA

Website : U.S. Surgeon General's Family History Initiative

Website : Incentiveplus

Website : UK Youth

Website : ChIPS - Australia

Website : Ability Online - Canada

Website : Sibling Support Project

Standard : Adolescent Health: Enhancing the skills of General Practitioners in caring for young people from culturally diverse backgrounds

Website : International Association for Adolescent Health

Website : Society for Adolescent Health and Medicine (SAHM)

Website : Youth Health - Vancouver Canada

Website : Door 2 Adulthood - Canada

Website : RCH Transition Project - Australia

Website : Adolescent Health Transition Project - Australia

Standard : Adolescent Transition Care

Website : eSpace

Website : Hambleton and Richmondshire Carers Centre

Standard : Quality standards and good practice guidelines: transition from paediatric to adult audiology services - guidelines for professionals working with deaf children and young people (2005)

Website : Health Care Transitions Resources

Website : Transition Pathway

Standard : Dream Team Transition Pathway

Website : Adolescent Health Transition Project - USA

Website : Ability Online

Website : Welcome to Transition! - MacIntyre Charity

Report : Entering adulthood? YoungMinds Booklets for Young People

Standard : Pathways to Success: Good practice guide for children’s services in the development of services for disabled children

Standard : Diversity Matters: Good practice in services for disabled children and their families from black and other minority ethnic communities

Report : Direct payments Uptake Project: An easy words leaflet

Report : Sleep? Whats that?

Report : Childrens Sleep Service

Website : Challenging Behaviour Foundation

Website : Transition and Longterm Ventilation

Report : MyHealth Passport

Website : Handsel Trust Website

Website : The Child Bereavement Trust

Website : WHO Definition of Palliative Care

Website : International Childrens Palliative Care Network (ICPCN)

Standard : A transition Guide for all services

Report : Three Wings Trust Supporting the Young with Special Needs in Richmond, Surrey

Website : Early Support website

Website : Children's Project on Palliative/Hospice Services (ChiPPS)

Report : Lost in transition: moving young people between child and adult health services

Report : Postural Care protecting and restoring body shape

Report : Transition: Moving On Well

Report : The National Service Framework for Long-term Neurological Conditions: national support for local implementation 2008

Standard : Having a break: good practice in short breaks for families with children who have complex health needs and disabilities.

Report : It’s about ability - An explanation of the Convention on the Rights of Persons with Disabilities [child-friendly version of the convention]

Website : Include Me TOO

Report : Championing the Rights of Disabled Children & Young People Handbook

Report : Aiming High for Disabled Children: Improving data

Report : 'How to' guide: How to involve disabled young people in Aiming High for Young People: a ten year strategy for positive activities

Website : Sibs: for brothers and sisters of disabled children and adults

Method : Online Course: Early intervention, education and support for young children with Down syndrome (birth to 5 years)

Standard : Prompts for care in the last days of life

Standard : How to support children and young people's campaigning

Website : Unique - The Rare Chromosome Disorder Support Group

Website : Disabled Parents Network (DPN)

Standard : From Hospital to Home: Guidance on discharge management and community support for children using long-term ventilation

Standard : Homeward Bound -Helpful hints on taking a young person on long-term ventilation home from hospital

Report : Making Ourselves Heard: Exploring disabled children's participation

Standard : Guidelines on the discharge from hospital of children and young people with high support needs

Report : Childcare for disabled children

Standard : Beyond Speech Alone: Guidelines for practitioners providing

Website : Guidelines for Informing Families of their Child’s Disability

Standard : Managing children with health care needs: delegation of clinical procedures, training and accountability issues

Website : Transition Case Studies

Report : Combined Curriculum in Paediatric Palliative Medicine

Standard : Ventilatory Support at Home for Children. A Consensus Statement from the Australasian Paediatric Respiratory Group

Report : Parental reaction to disability

Report : Feeding difficulties in disabled children

Standard : Caring for children and young people in the community receiving enteral tube feeding

Report : Disability services: An A–Z of what works

Standard : Supporting Short-break Care: An induction guide for the short-break workforce

Website : Afasic UK

Website : NHS Choices: Parent caring

Report : Disabled children: a legal handbook

Website : Family Fund

Report : Contact a family directory

Report : KIDS Direct short breaks: bringing families and workers together

Media : Parent's Story - Dravet syndrome

Method : The Early Support Developmental Journals

Website : Key messages about best practice for parents of disabled children

Website : Care pathways for babies, children and young people

Website : Whizz-kidz

Website : Deaf Lizards: Sexual health website for deaf youths

Website : Short Breaks Network

Standard : Caring for children with life-limiting and life-threatening conditions

Standard : Carers Matter – Everybody’s Business

Website : Askability

Website : TINTRO - Transition Information Network Transition Resources Online

Standard : A care pathway to support extubation within a children’s palliative care framework

Report : A parent’s guide: Making critical care choices for your child

Report : Optimizing respiratory health in children with cystic fibrosis

Report : Organizing home ventilation

Standard : Personal resuscitation plan template (East Midlands)

Report : Challenging behaviour: a guide for family carers on getting the right support

Standard : Needs based palliative care commissioning for children

Standard : Beginner’s guide to successful palliative care research

Report : My rights your responsibility - your child’s right to be included

Standard : Children's palliative care handbook for GPs

Report : Cost-effective commissioning for continence care

Website : Transition together (website)

Standard : West Midlands children and young people's palliative care toolkit (2012)

Standard : Basic symptom control in paediatric palliative care (8th edition)

Standard : Short breaks: training materials on the new duties in force from 1 April 2011

Report : Children and Young People's Palliative and Complex Care – new e-learning programme from Coventry University

Standard : ARC guide for services – Supporting disabled young people from black and minority ethnic communities through the transition to adulthood

Standard : Inclusion Standards Guide

Media : The whole picture: exploring disability and sexuality

Media : Family Companion films: William, Ysella and Lauren

Website : Newlife Foundation for Disabled Children

Standard : ACT Telehealth information sheet

Report : Investigating developmental delay/impairment

Website : Children's Hospice UK

Report : Communication and consultation with children and young people with learning disabilities: Bridges Resource Centre (Ofsted good practice example)

Website : A whole school approach to improving access, participation and achievement

Website : SEN National Advice Service

Website : The Children's Society: Advocacy for disabled children

Report : Advocacy services for children and young people: guide for commissioners

Report : Challenging a refusal to assess your disabled child for specialist service

Website : Managing My Way: resources to help disabled young people manage their own healthcare

Website : Bookmark (website)

Method : 'Managing my way'

Report : Standards framework for children's palliative care

Standard : Contact a Family: Need someone to talk to?

Website : Children with complex health needs (including those with life-limiting conditions: continence information and support for parents and care staff

Website : Palliative Care Zone

Method : Cerebral palsy toolkit

Website : Preparing for Adulthood programme (PfA)

Report : Good practice resources. Recruitment and retention of staff and the involvement of young people in the process: Canon’s House (Case study)

Website : Making it Personal

Report : Providing intense support for families with multiple and complex needs - Full learner resource

Method : Commissioning tools for improved outcomes for children with speech, language and communication difficulties

Report : Contact a Family parent guide to special educational needs (SEN) in England

Website : Hawthorn project: a service for children and young people with disabilities

Report : Perspectives on bullying and difference: supporting young people with special educational needs and/or disabilities in schools

Website : Look, Smile, Chat

Website : Support groups for parents and carers of children with epilepsy

Standard : BTS guideline for respiratory management of children with neuromuscular weakness

Method : Moving On Well resource pack: improving transition practice for young people with complex health needs and disabilities

Standard : NICE: Spasticity in children and young people (CG145)

Website : RNIB: Young people

Website : Help the Hospices National Audit Tools

Website : British Association for Supported Employment (BASE)

Website : Transition Toolkit

Standard : Transition from paediatric to adult care: Guide for commissioners and hospital / clinical teams

Standard : The ACT Transition Care Pathway: A Framework for the Development of Integrated Multi-Agency Care Pathways for Young People with Life-Threatening and Life-Limiting Conditions

Media : "We'll Tell You What We Want!"

Standard : Transition from paediatric to adult audiology services: Guidelines for professionals working with deaf children and young people

Media : Disability and women's health: advice from medical professionals

Website : The Inclusion Club Hub

Media : The Long Goodbye (YouTube video)

Report : Improving outcomes for disabled children by integrating early support and prevention services: Luton Borough Council

Website : ERIC Teen Hub

Standard : Palliative care for children and young people

Website : Nottingham University Hospitals (NUH) Youth Service

Website : CECOPS (Community Equipment Code of Practice Scheme)

Report : Making GP practices more welcoming for families with disabled children: information for GP practice teams

Report : GP practice guide: supporting disabled children and young people - information for health professionals

Standard : A guide to end of life care (2012)

Website : VIPER: Voice Inclusion Participation Empowerment Research

Report : When your child has additional needs

Standard : NICE: The epilepsies in children and young people (QS27)

Website : EPIC - Equality Participation Influence Change

Report : Good practice resource - Effective integration of pupils with disabilities and complex needs into mainstream school

Report : How to involve children and young people with communication impairments in decision-making

Method : Emergency Healthcare Plans

Website : What Works database: evidenced interventions to support children's speech, language and communication

Report : Disability hate crime third party reporting centre toolkit

Author

Emma Baxter, Web Developer, ChiMat, YHPHO, elb515@york.ac.uk

Subject

Category (Government Category List):

HEALTH

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This resource has been downloaded 449 time(s). Last downloaded Saturday, 18th May 2013